And why I am NOT quiet about it
If you are here because brain tumours have touched your life, you are not alone.
Brain tumour charities matter to me because this is personal. I live with an inoperable brain tumour, and I know how quickly life can divide into a before and an after. I also know how unseen this diagnosis can feel; in research funding, in awareness, and in everyday conversations.
That is why I speak up, and why I choose my partnerships carefully. I do not lend my name lightly. Every organisation on this page exists here because it delivers real, practical support to people living with brain tumours and to the families who support them.
That commitment is also why I am proud to serve as an active Patron of Yorkshire Brain Tumour Charity; a role rooted in advocacy, visibility, and doing the work when it matters.
Patron
Yorkshire Brain Tumour Charity provides practical support, raises awareness, and funds vital research across the region. Their work goes beyond diagnosis; supporting people through treatment, recovery, and the long-term realities that follow.
As Patron, I use my voice, platform, and lived experience to amplify their work, challenge complacency, and keep brain tumours firmly in public conversation. Advocacy should be visible, uncomfortable when necessary, and focused on outcomes.
Recognised for Advocacy, Not Just Awareness
I am recognised as a high-profile advocate within the brain tumour community because I use my platform to push for visibility, funding, and meaningful change — not performative awareness.
I am listed as a high-profile supporter by The Brain Tumour Charity, alongside others committed to challenging stigma and keeping brain tumours firmly on the agenda.
Recognition only matters if it leads to action. Mine is used to ensure brain tumours remain visible — and impossible to ignore.
Piers Townley, PR Manager at The Brain Tumour Charity and co host of The Charity Show podcast, has helped amplify the work I am doing to keep brain tumours visible through my platform, Influential Stars.
A recent episode gave a shout out to the platform, helping introduce the mission and the importance of lived experience advocacy to audiences across the charity sector.
